Hi. This is really just a rant that I am kind of copying from a comment section on Linkedin or Google Blogspot. I mm sorry for not recalling. It’s my Life. It’s a living hell my Life With Peripheral Neuropathy.. Not even really delving to deep on the subject of my original affliction RSD/ CRPS. It’s horrible. I pray no one ever get these deseases. I want to again, and please forgive me. But remind you all but please do just take a look at the advertising on this site. If you find an advertisement that grabs your interest please do click the ad. Purchase from it. I am compensated a few cents when you click on those ads.
I do not get compensated from the purchase so far as I know. But It will hopefully eventually help me to pay for this Domain Name and the Hosting for this website. Again it’s not much. I have had this site for about eight months and it has only gotten $11.92 so you see . I want to again please ask for you folks to leave comments. If you have any ideas of ways to live in my body . I will try most anything. My pain is killing me .
I have been suffering with RSD/CRPS for 8 years now . The pain has caused me to very often contemplate ending my life. I so often feel this is living hell and is the only answer. It has changed me in every way imaginable. I have suffered the worst bouts of depression. The ways it effects my life are far to numerous to list here. I had thought that it couldn’t possibly be any worse.
Then a little more than a year ago.I very suddenly and shockingly became afflicted with a rare form of Peripheral Neuropathy. It came on in a matter of a couple of days. A few months later about 5 I guess. I also diagnosed with Type 2 Diabetes.
If their are some ways to treat atleast some of this pain, Please contact me at your earliest convenience.? I have Diastasis Recti . Due to dificulty with Bladder and digestion. I have an Umbylical Hernia. I have Sjogrens Syndrome. I have gained about 80 lbs since my original accident. ( Work Related Injury ) I can no longer walk more than just a few feet in my house as it is to small here to use a walker or my wheelchair. I huddle around with strategically placed furniture.
I am in th VA healthcare system. Because my DRs. all relocated retired went in to holistic ,,,, you name it. But my wife passed away ( age 43 ) and so I had to be here for my children and brand new Grandbabies. We were seperated but remained extremely close. There has been suicide auto accidents failed surgeries . I have lost my Mom suddenly unexpected ( age 68 ) i can go on.. ” Living Hell ” Most people reading this would think I am fabricating all of this as it sounds like a horror story Right ? If I were reading it I would say… Nah , No friggin way man. And you could go on ??
I assure you every word is true. I now have to live on Social Security Disability .. $1048.00 a month. And so I am living with Girlfriend at her Elderly Moms 672 sq ft house . Yeah .. Really 672 sq ft. I have been trying to save money to move into an apartment where it is better suited for the disabled. But It’s impossible to get the money. Something always happens. Car breaks down. ( My girlfriends ) I am unable to drive . Its been years . I am going blimd.. I wrote to President Obama and asked if he could like please just pass the hat on my behalf. He could probably get donations enough to help me to get that Apartment and get some furniture. I have none. What possesions I have are 2 years in a storage unit in Vermont 1200 miles away.. And I received a Phone calll out of the blue from a Phsychiatrist in Daytona Quizzing me and strongly suggesting I make an appointment. The President actually thought I needed a shrink. Because I didn’t have 10 friggin dollars to my name to get my Grandchildren a darn thing for Christmas.
Please Ladies & Gentleman . If anyone can help . Please tell me how to do it.. I have been on so many different medications.. They help the Shoulders Neck Back and Arm some. And I am on the max dose of Lyrica . And it barely takes theedgeoff of the Peripheral Neuropathy. My knuckles in my hands are swelling up and pointy and odd lately and hurt so bad. I think it ‘ s Rheumatoid Arthritis. Afraid to go to Dr and see. Do you know of an agency or organization that would help me financially ? I would probably need like $5000.00 .
Forgive me for seemin to be begging.. What alternative do I have ? I can’t go any further down. I ask God , Please Lord tell me what this is all for? What do you have in mind for me Lord? I pray like there is no tomorrow. I am waiting for his answer., thank you for your time. And prayers and caring. If anyone knows of an organization that helps people like me.. In Florida they do not.. Please forward my PayPal address to them please folks. Again what do I have but to pray there is some group or something what ever it’s called that could help.. My PayPal account is as follows
Thank You Everybody.. Please comment here. I’m so sorry to write this here.
All of you who suffer Any Chronic pain Depression, Peripheral Neuropathy or anything please just leave your name that I may include you in my Heavenly Prayers.
Well it’s Sunday, just a couple of day til Christmas. Ya know I remember , it was not so long ago. Where I was so excited for the Holidays. The kids have kids of their own now. Don’t get to see them that often. In part because they don ‘t understand the Pain Syndrome that I suffer wiyh. They Just Don’t . I hear it from other people. My Bous tend to brag a bit. ” My Daddy Can Kick Your Daddys Butt .” My Daddy Can Hit That Baseball Further Than Your Dad . ” they would proclaim . Pain Syndrom, It’s my life. The news I am bringing to this quick post is this. I am in a Wheel Chair Now. I can’t walk more than 12-15 feet give or take. I suffer With Chronic Regional Pain Syndrom . aka. CRPS. aka , RSD. And it’s all I can think about . I have had it to some extent for years . and thought it was the most pain that I could handle. Until Neuropathy came and introduced itself to me. Around the last couple of days of Feruary first couple of March. It happened for me just that fast . How about for any of you who might possibly stop by this zblog . and please,,,,, Please do check into my advertising and buy something if you find it of worth. I am compensated . Meagerly by Adsnse Ads. Sponsored By Google. So yes please be sure to support my ads by clicking through . but Please Folks. Backpage back to my Blog. I really need to hear from some of you living with Some form of Pain Syndrom . Fill my comments up. ask me questions . Tell me I’m a moron with this ugly website. Atleast say Hello. ok? . I am not in a Word Program so I know their are lots of gramatical errors and misspelled words. I am sorry for that. My eyes are going so bad. in the last few months. I am having a hard time seeing. Ok then . oh yeah. When you comment on this post . Please use ” Pain Syndrom ” in the Subject line? Add your stories add your humor add some pics or video. it’s all open .
American Chronic Pain Association estimates that more than 15 million people in the U.S. and Europe have some degree of neuropathic pain. More than two out of every 100 persons are estimated to have peripheral neuropathy; the incidence rises to eight in every 100 people for people aged 55 or older. (1)
Symptoms of Painful Peripheral Neuropathy
Symptoms and prognosis vary between types of peripheral neuropathy. Generally, there is constant or recurring pain. The pain sensations are variable, and may feel like a stabbing sensation, pins and needles, electric shocks, numbness, or burning or tingling. Symptoms in diabetic polyneuropathy and other generalized neuropathies typically start in the hands or feet and climb towards the trunk. Often the pain is most troublesome at night and can disturb sleep.
The sensations may be more severe or prolonged than would be expected from a particular stimulus. For example, someone who has facial pain from trigeminal neuralgia (tic doloreaux) may find it excruciating to have something brush across a cheek.
Qualitatively the pain may feel different than pain caused by a normal injury. For one reason, neuropathy may affect not only nerves that transmit pain messages, but also non-pain sensory nerves that transmit other tactile sensations, such as vibration or temperature.
Painful peripheral neuropathy may also occur along with damage to motor nerves, or to autonomic nerves that govern basic physiological states, such as blood pressure – both of which cause non-sensory symptoms, such as muscle weakness or lightheadedness.
More than one process may go awry and set the condition in motion. Following an injury or illness, nerve endings may become sensitized and signal pain in the absence of painful stimuli. In some types of neuropathy, a nerve cell outer sheath, the myelin coating, degenerates, which disrupts normal transmission of nerve signals.
Diagnosis of Peripheral Neuropathy
Diagnosis of painful peripheral neuropathy may require several steps. An exam will involve taking a complete patient history; checking tendon reflexes, muscle tone, motor function and the sense of touch; collecting urine and blood specimens to screen for metabolic or autoimmune disorders; and tests to determine the nature and extent of nerve damage.
Follow-up tests may include an electroencephalogram (EEG) that records electrical activity of the nervous system; a spinal tap to test for breakdown of myelin; brain scans using computed tomography (CT) and/or magnetic resonance imaging (MRI); nerve conduction velocity testing to see how fast electrical signals move; and electromyography, which measures the electrical impulses of muscles at rest and during contraction. A biopsy may also be ordered to inspect the extent of nerve damage.
Treatments for Peripheral Neuropathy
Once neuropathy has developed, few types can be fully cured, but early intervention can improve outcomes. Peripheral nerve fibers can slowly regenerate if the nerve cell itself is still alive. Eliminating the underlying cause can prevent future nerve damage. Good nutrition and reasonable exercise can speed healing. Quitting smoking will halt constriction of blood vessels, so that they can deliver more nutrients to help repair injured peripheral nerves.
Mild pain may be relieved by over-the-counter analgesic medication. For patients who have more severe neuropathic pain, neuroactive agents such as anticonvulsants or antidepressants are commonly prescribed; their action on the central nervous system can calm nerve activity. Topical patches that act across the skin – for instance, delivering the anesthetic lidocaine or chili-pepper extract capsaicin – may also provide some relief. Another option is administration of a local anesthetic.
When pain does not respond to those methods, alternatives can include cannabinoids or opiate analgesics. If these measures are ineffective, in a small, select group of patients, opioids may be gradually introduced after carefully considering concerns and side effects. (2) Meanwhile, to relieve the most severe cases of neuropathic pain, nerves may be surgically destroyed, although the results might be only temporary and the procedure can lead to complications.
For some patients, a treatment regimen will also include physical or occupational therapy to rebuild strength and coordination.
Neuromodulation May Be an Option
In cases in which drugs are ineffective or side effects intolerable, an option for some patients may be use of an implanted electrical stimulator to interrupt pain signals by producing a mild tingling sensation (paresthesia) in the painful area. Neuromodulation for intractable peripheral neuropathic pain may be carried out through spinal cord stimulation or through peripheral nerve stimulation.
Spinal cord stimulation starts with a trial phase. A permanent implant is generally offered to candidates if the temporary implant reduces pain from 50-70%. For appropriately screened patients, meanwhile, peripheral nerve stimulators can have an 80% to 90% near-term success rate. (3-5)
In patients who eventually develop a tolerance to neurostimulation, a potential future option is delivery of a pain-relief agent to targeted sites in the body using an intrathecal drug delivery system. For instance, ziconotide, a non-opiate drug now often employed to treat complex regional pain syndrome, has been suggested by specialists as a possibly viable alternative pain-relief agent. (6)
Many Peripheral Neuropathy Types, Multiple Causes
There are more than 100 different types of peripheral neuropathy, according to the U.S. National Institute of Neurological Disorders and Stroke (NINDS). The condition can either be inherited, or develop due to injury or illness.
Some 30% of peripheral neuropathies occur as a complication of diabetes, and an estimated 26% of patients with diabetes have some degree of diabetic neuropathy, due to prolonged effects of high blood sugar levels. In another 30% of cases, the precise cause of a painful peripheral neuropathy is unclear (or “idiopathic”). Other neuropathy causes include physical injury to a nerve, tumors, exposure to toxins, alcoholism, kidney failure, autoimmune responses, nutritional deficiencies, shingles, HIV infection, and vascular or metabolic disorders. (7)
If only one nerve is affected, the condition is called mononeuropathy. If several nerves are involved, the disorder is called mononeuritis multiplex, and if the condition affects both sides of the body, it is called polyneuropathy. The condition may be general, or located in a particular area, which is called focal peripheral neuropathy.
Focal or Multifocal Peripheral Neuropathies
Focal or multifocal peripheral neuropathies include:
Carpal tunnel syndrome (caused by pressure on the nerve due to inflammation from repetitive stress), or other so-called “entrapment” syndromes
Radiculopathies, including sciatica (a shooting pain in the arms or legs due to irritation or compression of the nerve root in the spine)
Phantom limb pain and stump pain
Postherpetic neuralgia (7)
Generalized polyneuropathies are more common, and can be present due to:
Demyelinating conditions (Guillain-Barre Syndrome; chronic inflammatory demyelinating polyneuropathy;
Charcot Marie Tooth Disease (Type I or II)
Autoimmune disease (rheumatoid arthritis, lupus)
HIV (caused by the virus itself, by certain drugs used in the treatment of HIV/AIDS or its complications, or as a result of opportunistic infections) (8)
Vitamin B deficiency
Toxin exposure (which may include some chemotherapy drugs or anti-retroviral agents; illicit drug use, such as glue-sniffing; or exposure to heavy metals found in industrial settings such as arsenic, lead, mercury, and thallium) (9)
As with any medical problem, the proper diagnosis of a peripheral neuropathy requires that a physician take a history and perform a physical examination. The history must include a review of any currently prescribed medications because some medications can cause a peripheral neuropathy. The physician will also inquire about any relatives that may also have similar symptoms. If they do, there is an increased chance that the patient has a genetic peripheral neuropathy.
In cases in which the cause of the neuropathy is not obvious, bloodwork and potentially an analysis of urine is necessary to help make the specific neuropathy diagnosis.
The physician may also order electrodiagnostic testing. Nerve conduction studies (NCS) require electrical stimulation of the nerves. Responses are recorded on a machine. An electromyogram (EMG) may also be ordered. This test involves the placement of fine needle electrodes into muscles. With the needle inserted, the patient is asked to move the limb. The resulting electrical activity from the muscle is then amplified and displayed for the physician. These tests are very safe but uncomfortable. Some patients do not mind the test in the least; others run for the door after the first nerve is stimulated! It is very helpful for patients to be mentally prepared beforehand that the test involves electrical stimulation and needle placement. Oral pain relievers may be taken prior to the test and do not affect the test results.
Painful peripheral neuropathy is a common neurological disorder characterized by numbness, weakness, tingling and pain, often starting in the hands or feet.
There are more than 100 different types of peripheral neuropathy, according to the U.S. National Institute of Neurological Disorders and Stroke (NINDS). The condition can either be inherited, or develop due to injury or illness.Certain chemotherapy treatments can cause damage to the peripheral nervous
system, which include all nerves outside the brain and spinal cord.
Physical trauma, repetitive injury, infection, metabolic problems and exposure to toxins and some drugs can all lead to peripheral neuropathy.
Most cases of neuropathy are found in people who have the metabolic disorder diabetes,2 when it is known simply as diabetic neuropathy.
Diabetic neuropathy is a micro vascular complication: excess blood glucose in people with diabetes can, over a number of years, injure the walls of tiny blood vessels supplying nerves, especially those in the legs.3 The consequence of the nerve damage can be an inability to feel pain, and so problems can go unnoticed by people with diabetes, for example because of “insensate” injury to their feet.4
In the US, diabetic neuropathy is the primary cause of diabetic foot problems and ulcers.5 Specific estimates vary, but overall about half of people with diabetes have diabetic neuropathy.6
While diabetes is the most common cause of neuropathy, other medical conditions can also lead to the problem:1
- Chronic liver disease
- Chronic kidney disease
- HIV infection and AIDS
- Long-term excessive alcohol intake
- Vitamin B deficiency and other nutritional deficiency
- Cancer - lymphoma or multiple myeloma
- Lyme disease, a tick-borne bacterial infection
- Charcot-Marie-Tooth disease, a genetic cause of nerve damage, particularly in the lower limbs
- Guillain -Barré syndrome, a rare condition that damages peripheral nerves
- Diphtheria, a common bacterial infection in developing countries such as Haiti and Vietnam, but rare in other parts of the world.
This evening is probably not best for me to begin with blogging about the vSymptoms Of Peripheral Neuropathy or the topic of this post. Neuropathic Pain. You see I have been suffering with a major flare up of Neuropathic Pain consistantly for almost two days. So I am willing to bet that all of you reading this post could probably understand my reservations. But emotion and honesty is exactly what I want tIhis blog to be about.
I have decided to start a blog of this nature. Because I noticed over the months of my trying to research Peripheral Neuropathy. That their are all of these inpersonal medically based fact sheets that all say exactly the same thing.
None helped me to really understand what to expect. I had no idea it was going to be so bad. I was not able to find any really current forums. I don’t really care to much for forum type of communication anyway. So this is going to be my first post . The title Neuropathic Pain. Is the only thing I can think about anymore. It is consuming me. So I intend to share my story . And I want to make contact with other sufferers . Folks who are actually living with the Symptoms Of Neuropathy.